Late last year, amidst the pandemic and changing weather, we had the opportunity to capture moments in the lives of two people living with Hodgkin lymphoma for Seattle Genetics. Gene and Brandon shared their story from diagnosis to treatment to support. Read more about them at: https://www.adcetris.com/classical-hodgkin-lymphoma/patient-stories/
Meet Stephanie, a UC patient.
Stephanie has felt the impact of moderate to severe UC. After the medication she was taking did not work well enough, she and her doctor decided to consider other prescription treatment options, and that’s when they discussed the risks and benefits of taking XELJANZ.
“Talk to your doctor, advocate for yourself, be your voice.” – Stephanie
To Learn More visit: https://www.xeljanz.com/uc/meet-stephanie
We worked with Pfizer and their creative partners to produce a series of internal and external videos focused on #TalkingUC to make #IBDVisible. In this video, UC advocate Brooke shares her advice for the newly diagnosed. Brooke is only one of the many advocates and healthcare professionals profiled in the campaign. Follow @pfizerinc on IGTV for more stories and check out on.pfizer.com/2OTDuJZ for resources.
The UC Narrative is a global initiative created by Pfizer to engage the UC community to help identify how people living with ulcerative colitis are impacted by the disease. The U.S. survey findings represent a subset of the UC Narrative global survey, which was developed with input from the Global UC Narrative Advisory Panel.
The Global UC Narrative Advisory Panel, 1 comprised of people living with UC, as well as leading gastroenterologists, IBD nurses, a psychologist, and patient organizations, including the Crohn’s & Colitis Foundation in the U.S., from 10 countries will work together to turn the insights gleaned from the survey into actions that can help identify real-world needs and concerns about living with UC.
For the U.S. survey, a total of 301 U.S. UC adult patients were surveyed online or by telephone between August and October 2017. Patients self-reported that they had been diagnosed with UC and had their diagnosis confirmed by an endoscopic procedure, did not have a colectomy, had visited a GI office in the past 12 months and had taken prescription medication for their UC; patients who reported taking only 5-ASA (5-aminosalicylic acid) medications were excluded. A total of 149 U.S. gastroenterologists were surveyed online between August and November 2017. To qualify for participation, physicians must have seen at least 10 UC patients per month, with at least 10 percent of those patients currently taking a biologic treatment for UC. Patients and physicians who qualified for and successfully completed the survey were compensated for their participation.
1Where permitted, members of the Global UC Narrative Advisory Panel were paid honoraria for their participation.
To learn more: https://www.pfizer.com/news/press-kits/uc-narrative
Get Your Full Course, is an educational campaign designed to provide resources for people living with inflammatory bowel diseases (IBD) on the paired role of nutrition and appropriate therapy in managing IBD. Produced in collaboration with Tonic Life Communications for Janssen Biotech, Inc. and the Crohn’s & Colitis Foundation of America (CCFA).
Get Your Full Course features television host and Food Network celebrity cook Sunny Anderson, who is speaking publicly for the first time about her journey with UC.
“Having lived with UC for more than 20 years, I recognize the importance of talking more openly about the disease and educating people with IBD that we don’t have to shy away from food because of our disease,” said Sunny. “Food is a big part of my life. I am excited about Get Your Full Course and its focus on helping the IBD community learn about foods we can enjoy that are also rich in the nutrients we sometimes lack due to the way the disease affects the intestines.”
Produced and Directed by Chris Valentino
Cycle 4 UC, is a branded awareness campaign created to provide resources for people living with inflammatory bowel diseases (IBD). Produced in collaboration with Tonic Life Communications for Janssen Biotech, Inc.
Cycle 4 UC features professional cyclist and UC patient Cory Greenberg, who shares his drive to live with UC.
“I think the most important thing, and the most significant advice that I can give to any individual living with ulcerative colitis is to become informed. You can’t really decide what treatment plan is best for you, until you know what exactly is happening within you.
Talk to people, don’t be afraid to open up. It’s a very real situation and in order to have a real end result and to feel that you can get back to what you love to do you need to be able to share and to really open up and express what’s going on within your mind and your body.”
The program was Produced and Directed by Chris Valentino
Every journey begins with hope.
Innerstate follows the journeys of three very different adults on similar paths. The subjects are Jason, diagnosed with psoriasis, Janie, diagnosed with rheumatoid arthritis, and Ray, diagnosed with Crohn’s disease, all diseases of the immune system, which may be characterized by immune deregulation, chronic inflammation and tissue damage. In total, they affect millions of people worldwide, while also having a profound impact on their families, friends and loved ones.
The film opens with a long shot of a suburban highway, giving the viewer the distinct feeling of taking a road trip or journey. Through the film’s progression, first-hand accounts are intertwined to show how Jason, Janie and Ray, people with different illnesses and from different backgrounds, share an important bond with each other. Each has a unique story to tell, but their “inner states” are similar in that they found the strength to keep striving for their dreams by staying focused on overcoming their conditions.
The film was produced and directed by Chris Valentino